14
years ago I became quite ill. I had a bout with Chronic Fatigue Syndrome in
1989 which lasted a couple of years, but none of the Doctors I saw back then knew
what it was. That was pretty common
then.
It
came back in December 1998 with an amazing vengeance. It took 6 months to be
certain what I was dealing with. I won my disability case on the merits of severe
Chronic Fatigue Syndrome, severe Fibromyalgia, severe Asthma, and Arthritis.
Then
a few years ago, I developed what my original Doc and I called “The Weird Back
Thing”. None of the Doc’s I have seen have been able to determine exactly what
it is, but they know what it does. It is
possibly a recurring virus in my back that wipes out the strength in my middle
and lower back and abdomen and to some degree my legs. This is why I use a power
wheelchair. I also was diagnosed with Diabetes about 3½ years ago.
I
don’t tell you this for your sympathy, or pity but to hopefully share some
understanding.
Being
disabled is hard work.
The
paper work alone would kill most people, or at least drive them securely around
the bend. It happens to most of us at
times.
What
I want this blog to be about is that being disabled is hard, very hard. Different people with different conditions
have an enormous variety of things to deal with. I want to share some of my experiences with
you. Not just the stuff that is so hard to
deal with, but also the amazing blessings that come are at times
mindboggling.
