So, who is this woman and why does she think she gets to write a blog?!

14 years ago I became quite ill. I had a bout with Chronic Fatigue Syndrome in 1989 which lasted a couple of years, but none of the Doctors I saw back then knew what it was.  That was pretty common then.

It came back in December 1998 with an amazing vengeance. It took 6 months to be certain what I was dealing with. I won my disability case on the merits of severe Chronic Fatigue Syndrome, severe Fibromyalgia, severe Asthma, and Arthritis.

Then a few years ago, I developed what my original Doc and I called “The Weird Back Thing”. None of the Doc’s I have seen have been able to determine exactly what it is, but they know what it does.  It is possibly a recurring virus in my back that wipes out the strength in my middle and lower back and abdomen and to some degree my legs. This is why I use a power wheelchair. I also was diagnosed with Diabetes about  3½ years ago.

I don’t tell you this for your sympathy, or pity but to hopefully share some understanding. 

Being disabled is hard work.

The paper work alone would kill most people, or at least drive them securely around the bend.  It happens to most of us at times.

What I want this blog to be about is that being disabled is hard, very hard.  Different people with different conditions have an enormous variety of things to deal with.  I want to share some of my experiences with you.  Not just the stuff that is so hard to deal with, but also the amazing blessings that come are at times mindboggling.